Everyday Heroics is about the dilemmas and difficulties that can arise when living with chronic illness. I began Everyday Heroics because I recognise how hard it is to manage everyday life with chronic illness. Not just dealing with symptoms, but learning new ways of doing things, coping with the loss of the future I thought I was heading towards and coming to terms with being ill indefinitely. This blog represents an attempt to gather together some of the resources that have been useful to me, together with reflections on my attempts to put them to use in my day to day life.
I am not a medical expert. I am a patient who has lived with chronic illness for 6 years*. I am fortunate to live in the UK where we have the National Health Service, and in a city that provides access to counselling, training courses and information services for patients. As a result, I have built up a collection of resources, ideas and strategies for self-management of chronic illness. I have also learnt that implementing these strategies can be a long, slow and sometimes frustrating process. I am also fortunate that I have a partner in full-time work, I haven’t had to apply for benefits and the university where I am studying for a PhD has been extremely supportive. I appreciate that many people with chronic illness will have additional stresses and demands to contend with and my personal experience will not resonate for others.
I like science-based medicine. I’m not interested in untested, unproven treatments. However, this raised a dilemma for me. What should we do when the scientific evidence is limited or doesn’t exist yet to guide our treatment decisions? Or if we have exhausted the science-based treatments and are still ill? My current plan is that I will follow my doctors’ guidance and practice self-management skills. But I also try to be accepting of the reality that not everything can be cured. I have not given up hope of someday getting better – but I’m not relying on it. Instead I am doing my best to address my symptoms together with the social, psychological and emotional problems that accompany chronic illness diagnosis through self-management techniques. It is my aim to live as meaningful a life as possible, while recognising that I am going to need to make a lot of adaptations and accommodations to my illness. I am trying to balance acceptance, optimism and determination to find a way to live life as fully as possible in these circumstances.
I hope you find something on this blog useful or inspiring.
Disclaimer: The content provided on this blog represents my personal views. The information shared on this site is not medical advice and is not intended to replace consultation with your doctor or other health professional. I am only human make mistakes like everybody else. Therefore, I do not make recommendations. I only offer my own experiences, opinions and information I have found useful or interesting. I do not provide any guarantee that the information on this website is accurate, up-to-date or without omissions. I assume no liability for damages arising from the use of this site. Links to third party websites are provided as a service and I am not responsible for the content of those websites. The provision of links to other websites is not an endorsement of those sites.
Please take good care to assess the validity and accuracy of information for yourself and ensure you have appropriate guidance before making decisions. Speak to your doctor or a qualified health professional for advice and don’t trust the internet with your health!
That said, I do like to keep the website updated and typo-free. If you think you have spotted an error please let me know
absorb what is useful, reject what is useless and add what is essentially your own – Bruce Lee
*I have been living with chronic vestibular migraine since 2012 and fibromyalgia since early 2017.