I booked tickets to a gig today. It kind of seems like madness. I’m feeling kind of depressed. I’m having a flare-up in symptoms. I cancelled going out on Thursday because I wasn’t up to it. Simple things seem overwhelming. A heavy-metal gig doesn’t seem like the smartest plan does it? Maybe or maybe not.… Continue reading Making a promise to myself
I’m afraid, though I can’t say what of. I can feel that emptiness inside me. It’s only small at the moment but it’s hard and stubborn. I can feel the dead space, the black hole, in my chest. It’s not that bad. I’m only a bit frightened, only a bit numb, brittle. I know what… Continue reading I’m scared I’m getting depressed
I discovered that making a crib sheet can be a useful tool for helping me to manage my chronic illness with some activities. I discovered this almost by accident while writing an email to my yoga teacher. However, having a useful tool is only half the battle. Figuring out how you are going to make… Continue reading If at first, you don’t succeed…
When my fibromyalgia diagnosis was fairly new I was having a lot of trouble settling to sleep because of the pain. One of the simple and sensible suggestions I came across was to have a bath before bed. The bath did make my arms and legs feel better but the migraine made my eyes too… Continue reading Bath time dilemmas: it’s all in the way you tell it
My last post was about how I came across Tody and how it has helped me with doing the housework. There’s nothing wrong with what I wrote but afterwards I felt like a significant part of the story was missing – and that’s all the frustrations, false starts and difficult feelings that happened before I… Continue reading Housework: a postscript
Yesterday I got to the postdrome ( or hangover) phase of the migraine and it wasn’t until late afternoon that another migraine started. This is really exciting for me. It’s been well over a year since I experienced any kind of gap between one migraine and another. So even though I didn’t have a completely… Continue reading A reason to celebrate!
My house isn’t the worst. I won’t make it onto reality TV with the state of my dishes. But the clutter and dust has been getting me down. I can see unfinished DIY jobs, dust collecting in corners and a general grubbiness creeping in. It’s depressing because it reminds me of my lost physical ability.… Continue reading Using an app to take teeny-tiny steps toward a tidy house
Eating a vegetable really shouldn’t be a cause for celebration but I’ve fallen out of all my good habits lately. It’s hard coaxing yourself to eat with a fussy migraine brain and the accompanying nausea. But I felt I hit a low point last night when I insisted the only thing I’d have for dinner… Continue reading Small victories #4: ate some peas
I managed to get myself down to my allotment today for the first time in a while. But it was herculean effort to get out the door. I was talking to myself as if I was coaxing a reluctant child “just get your coat on” ” see that wasn’t so bad, now get your boots”,… Continue reading Feeling stuck
The relief from lying down and feeling some of the tension and pain in my neck and shoulders subside. Getting my heap of cushions and pillows just right so my head and neck are completely supported.