I find flare-ups and setbacks very frustrating, and emotionally difficult. I’d be surprised if that isn’t normal for people with chronic illness. All the worst emotions tend to surface. And it’s even harder than usual to fend off self-doubt and self -criticism because I’m tired and sore and cross. There are two phrases that have… Continue reading Coping with difficult emotions during a setback
I have started a longer post about relapses, flare-ups and setbacks. But due to the flare-up/set back I’ve been having I couldn’t make progress on it in the way I had intended. My idea was to write about flare-ups and setbacks as I worked through my own. I thought I’d go over the resources and… Continue reading A work in progress…
My last post was about how I came across Tody and how it has helped me with doing the housework. There’s nothing wrong with what I wrote but afterwards I felt like a significant part of the story was missing – and that’s all the frustrations, false starts and difficult feelings that happened before I… Continue reading Housework: a postscript
Yesterday I got to the postdrome ( or hangover) phase of the migraine and it wasn’t until late afternoon that another migraine started. This is really exciting for me. It’s been well over a year since I experienced any kind of gap between one migraine and another. So even though I didn’t have a completely… Continue reading A reason to celebrate!
My house isn’t the worst. I won’t make it onto reality TV with the state of my dishes. But the clutter and dust has been getting me down. I can see unfinished DIY jobs, dust collecting in corners and a general grubbiness creeping in. It’s depressing because it reminds me of my lost physical ability.… Continue reading Using an app to take teeny-tiny steps toward a tidy house
I managed to get myself down to my allotment today for the first time in a while. But it was herculean effort to get out the door. I was talking to myself as if I was coaxing a reluctant child “just get your coat on” ” see that wasn’t so bad, now get your boots”,… Continue reading Feeling stuck
The relief from lying down and feeling some of the tension and pain in my neck and shoulders subside. Getting my heap of cushions and pillows just right so my head and neck are completely supported.
I have been feeling the gravitational pull of my bed almost since I got out of it this morning. I’d find myself stopped still, staring into space. Or absentmindedly taking a seat in the middle of a short conversation, or propping up my head with my hand. I was still surprised to find myself waking… Continue reading Where did my afternoon go?
Recently I’ve progressed from feeling low into depression and one of the tell-take signs is a complete disregard for taking care of myself. I just don’t care. And what does an act of self-sabotage look like? It’s not going on a bender, avoiding an important deadline or staying up all hours. No – it’s going… Continue reading Pitiful acts of rebellion
I experienced a setback during December that seems to be dragging on and on As a result I’m losing the will to keep persevering with rebuilding habits and routines again and again. It seems like I’m hit with a new obstacle or mini-setback before I’ve got close to where I was in Autumn. I feel… Continue reading Small victory#2: Made some food to freeze for later